I’m not doing so great lately, my health has been declining for a while and I just found out what the very likely cause of all this stuff that my doctors have been stumped by.

I was getting an MRI to see what was going on with my ear and throat as my tinnitus has gotten super bad and I’ve been feeling like I’ve had an infection in my throat for months. Two days after getting the MRI I get called to schedule an MRI. I tell them I just had one, they tell me this was requested to look further into something from the first one.
A couple weeks go by, nothing from my doctors. No phone call, follow up office visit….nothing.
Go to second MRI appointment, they ask me “do why are you here today?” I tell them “I have no idea, nobody has called or sent me a message or anything about this, I’m still waiting for them to tell me about the first MRI 2 weeks ago”. They say “oh, ok” and do MRI

Then I get a call from a specialists office a few days later to schedule me to talk with them about my brain tumor.

I said “excuse me, my WHAT?!”
She was a bit thrown and said “oh… uhm…. The tumor they found from the MRI they did for your ear and throat. They scheduled you for a more detailed MRI after that… did…. Did nobody tell you this?”
I said “NO… nobody has told me shit! I got an MRI weeks ago and heard nothing. Then had a second MRI and nobody told me why or called or reached out to discuss that one either! I have a fucking brain tumor?!”
She was not prepared for this.
Neither was I

That’s not exactly how one wants to find out they have a goddamn brain tumor.
Bang up job there
She was shocked and felt super awkward about this… you know, because my doctor DIDN’T call me in sit me dow and tell me this delicately and professionally.
And I just got that steaming turd dropped in my lap by the scheduling department receptionist who assumed I had known this for weeks.

Great thing to do to someone who has been suffering from anxiety and depression and a slew of other health related issues that this tumor explains.

The BEST part is that like 6 months ago my one doctor had my get some blood work done to check for a specific kind of brain tumor that could explain like 89% of my symptoms that they don’t know why I had
Bloodwork had 2 out of 3 markers indicating a tumor elevated… doctor said “well, that’s not conclusive…”
I asked “what WOULD be more conclusive?”
She said “I wouldn’t worry about that right now”
And here we are, months and months later with an MRI accidentally picking up a glimpse of the tumor that the blood work I had indicated was there.

Because you know what the best thing to do with cancers is? Wait a while. You never want to get a jump on them, or treat as soon as possible.
No doctor has ever said “thankfully we caught it early” or anything like that.

Sooooooo
Yeah
I’m furious about this
And also freaking out
The soonest appointment they had to discuss this is in June
They found this in late March…. Gotta wait till June to talk to someone about it.
So it’s been fun having nearly daily panic attacks about the fucking brain tumor that is just in my head NOT getting treated for god knows how long at this point and have to wait another month and change before we can even begin to start figuring out what to do.

Here’s hoping I make it to June.